I received my brain tumour diagnosis in May 2018 and am still trying to get my head around the news and work out where my life is going now…
The first I knew things were not quite right was following an “episode” but I put it out of my mind as much as I could and carried on… until the next “episode” at which point I had to call for help and ended up in the local A&E for the rest of the evening and into the night.
Following on from this and various tests including MRIs, MRI with contrast and CTs I got the confirmation my life was changing and I needed to rethink my future.
I have some very good friends who have been with me every step of the way since then – we even have a support group on WhatsApp! which I am so so thankful for. Yeah, things were changing but I was not alone and I could do this one day at a time.
What I know:
- I have a brain tumour in my thalamus (deep inside the right side)
- It is inoperable due to the location (I am told a biopsy would most probably leave me with severe disabilities and possible death so not an option!)
What I don’t know:
- what the future holds…
I have read a number of books and will add some reviews here in time.
Gideon Burrows Brain Tumours: Living low grade
Adam Kay – This is Going to Hurt
